Do I take Sugar?
Whenever there is a news item about people who live with a disability a representative pops up on the telly to speak on their behalf!
Where do these representatives come from?
Who elects them?
Who selects them?
I am very hard of hearing and I have up to 50 absence epileptic fits a day, but I have never, ever, been approached by any organisation purporting to represent my disabilities before they give evidence on my behalf to the National Assembly or Westminster Committees. When I see these people representing me on BBC Democracy Live I wonder how on earth they were selected to speak for me because they haven't got a fucking clue about the realities of living with hearing loss or epilepsy in rural north Wales.
Who are Epilepsy Wales/Epilepsi Cymru? I have lived with epilepsy for 40 years without this organisation ever aproaching me or asking my opinion about epeleptic issues! Apparently Wales Council for the Deaf is a lead organistaion in informing the Assembly about hearing loss issues - sorry for the pun, but as a deaf person, I've never heard from them!
Today's news about the closure of another two Remploy factories in Wales is apparently supported by SCOPE a charity that has grand ideas about some disability utopia, but doesn't have a realistic clue about the realities of living with a disability!
How many people who live with a disability voted for the Scope Representative to "speak for them" in support of a Tory attack on real people whose only chance of a job is in a Remploy factory?
I agree with IDS, most people with a disability can work! Disabled people should have work. Working is a good therapy, but the idea that I can compete in an open jobs market is a total fallacy. Be honest – given the choice of employing a healthy young 17 year old or 50+ deaf epileptic – who would you give the job to?
Sorry SCOPE, but your trendy lefty lovey attitude towards disability doesn't help me!
The only way that I can get a job is if I can get an employer that discriminates in my favour – like Remploy!
The only way that I can be represented is if I am consulted as a disabled person -rather than be represented by the wheelchair pusher who is asked does he take sugar and answers, wrongly, on my behalf - like Scope!