Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

07/12/2012

Do I take Sugar?


Whenever there is a news item about people who live with a disability a representative pops up on the telly to speak on their behalf!

Where do these representatives come from?

Who elects them?

Who selects them?

I am very hard of hearing and I have up to 50 absence epileptic fits a day, but I have never, ever, been approached by any organisation purporting to represent my disabilities before they give evidence on my behalf to the National Assembly or Westminster Committees. When I see these people representing me on BBC Democracy Live I wonder how on earth they were selected to speak for me because they haven't got a fucking clue about the realities of living with hearing loss or epilepsy in rural north Wales.

Who are Epilepsy Wales/Epilepsi Cymru? I have lived with epilepsy for 40 years without this organisation ever aproaching me or asking my opinion about epeleptic issues! Apparently Wales Council for the Deaf is a lead organistaion in informing the Assembly about hearing loss issues - sorry for the pun, but as a deaf person, I've never heard from them!

Today's news about the closure of another two Remploy factories in Wales is apparently supported by SCOPE a charity that has grand ideas about some disability utopia, but doesn't have a realistic clue about the realities of living with a disability!

How many people who live with a disability voted for the Scope Representative to "speak for them" in support of a Tory attack on real people whose only chance of a job is in a Remploy factory?

I agree with IDS, most people with a disability can work! Disabled people should have work. Working is a good therapy, but the idea that I can compete in an open jobs market is a total fallacy. Be honest – given the choice of employing a healthy young 17 year old or 50+ deaf epileptic – who would you give the job to?

Sorry SCOPE, but your trendy lefty lovey attitude towards disability doesn't help me!

The only way that I can get a job is if I can get an employer that discriminates in my favour – like Remploy!

The only way that I can be represented is if I am consulted as a disabled person -rather than be represented by the wheelchair pusher who is asked does he take sugar and answers, wrongly, on my behalf - like Scope!

03/12/2012

Is the government reducing benefits costs by killing claimants?

This is a press release from Disabled People Against Cuts Caerdydd which will be holding a memorial protest today for those who have died as the result of the Westminster Government's draconian treatment of disabled and chronically sick people as part of their benefits cuts policies.

Disabled People Against Cuts Caerdydd and supporters will gather at the Aneurin Bevan Statue, Queen Street at 5 pm on Monday 3rd December. The event will include the lighting of 1000 candles to remember welsh disabled and sick people who died last year shortly after being told that they were fit for work and having benefits cut by an Atos 'work capability assessment. It may also include 'direct action' such as blocking roads.

The National Day of Remembrance for those killed by ATOS has been supported by disability campaigning organisations including Disabled People Against Cuts, Black Triangle and others. 29 MPs signed an Early Day Motion in support off the day including Welsh MPs, Martin Caton, Anne Clwyd, Jonathan Edwards and Albert Owen.
http://www.parliament.uk/edm/2012-13/687

According to an FOI (Freedom of Information) response publicised by the Daily Mail journalist Sonia Poulton on October 7, the current weekly average Atos/DWP death toll of people found fit for work after an ESA work capability assessment now stands at 73 people per week.

A FOI in April revealed in 2011 an average of 32 dying a week after failing test for new incapacity benefit. More than a thousand ­sickness benefit claimants died last year after being told to get a job.
http://blogs.mirror.co.uk/investigations/2012/04/32-die-a-week-after-failing-in.html

There have been numerous horror stories in the media of people with terminal illnesses (in one infamous case even someone in a coma) being declared fit for work by ATOS and having their benefits cut.

Recent Stories:

'A GRIEVING boy of 13 has accused Atos of killing his disabled dad. Kieran McArdle told the Daily Record in a harrowing letter how his father Brian, 57, collapsed and died the day after his disability benefits were stopped. He had been assessed by Atos and deemed “fit for work”'

http://blacktrianglecampaign.org/2012/11/01/atos-benefits-bullies-killed-my-sick-dad-says-devastated-kieran-mcardle-13/

'A cancer sufferer, who had her benefits cut by government officials who said she was fit to work, has died'.
http://www.bbc.co.uk/news/uk-northern-ireland-19433535

'I sought this debate in order to raise the case of one of my constituents, Colin Traynor, who was epileptic. He was assessed as fit for work, yet died less than four months later' (Michael Meacher MP)
http://www.theyworkforyou.com/debates/?id=2012-09-13a.532.0

21/01/2009

Rhodri is, probably, right.

Still on the subject of President Obama.

It's not often that I disagree with Damon Lord. It's not often that I agree with Rhodri Morgan either, but I think that Damon's condemnation of Mr Morgan as an ignorant, racist twat is unwarranted.

Rhodri has many failings, but being an ignorant, racist twat isn't one of them. I have known Rhodri for many years. I knew him before he ever became an elected politician and I know that his first hand experience of segregation in the USA, when he was a student there in the 1960's, has had a profound and influencing affect on him and his world view. Rhodri is not a racist and has never, ever, supported any racist view. To claim otherwise is very disingenuous!

As far as Rhodri's comments are concerned I tend to agree with him.

The first point to make is that Barack Obama is the Head of State of the USA, the equal to Her Majesty the Queen in the UK. If the monarchy survives, I can't see an heir apparent marrying a black person or a person of mixed race for at least another four generations. If the UK survives me, I will never see a black head of state. If the UK and its monarchy survive my great grandchildren the likelihood of them seeing a person of colour as head of state is minimal.

Electing a black Prime Minister is a lot more complex than electing a black president.

Four years ago Barack Obama was a newly elected junior senator. Regardless of age, gender, sexual preference or race, no newly elected British MP can become PM in 4 years, rarely is a PM selected before he or she has had 16 years of service as an MP under the belt (I know there have been odd exception). I don't see, at the moment, a "probable" Black or Asian PM amongst those in the Commons now, so it's down to the next tranch of MP's.

If he made a claim, Gordon Brown would be entitled to Disability Living Allowance, and could be noted as our first registered Disabled PM. Having a registered disabled person as Prime Minister would be such a boon and encouragement to the many young people who live with a disability and feel hindered. But Mr Brown chooses to hide his affliction rather than registering it - why? Because he is embarrassed by his disability and he doesn't think that Britain is ready to accept a disabled PM! - Prat!

I honestly don't think that a Black or Asian MP has any chance of being Prime Minister before 2025. If we have our first Labour female PM or the first openly Gay PM before then the black lad's chance will be indefinitely postponed! I can't see it happening in any legislature in these islands in the next 50 years.

I hope that I am wrong - but I doubt it!

16/01/2009

Disability Discrimination

A couple of points relating to disability discrimination.

First of all many congratulations to David Allen a 17 year old Shefield man who lives with Muscular Dystrophy on winning a legal challenge against the Royal Bank of Scotland for failing to provide access at one of their Branches in the city. The bank had argued that by providing access to other branches and providing internet and telephone options that it had fulfilled its obligations to provide access for customers with a disability. Sheffield County Court disagreed and awarded Mr Allen £6,500 in damages and has instructed the bank to rectify matters at the branch in question before next September.

The bank is to appeal, but whatever the outcome of the appeal it will help businesses and people with disabilities to understand what obligations businesses have to meet the "reasonable adjustments" provisions of the Disability Discrimination Act. Definitely a landmark case, so well done and thank you David!

The second point relates to Gordon Brown. Mr Brown is totally blind in one eye and has poor sight in the other. Given this, is it really appropriate for leading Tories to make fun of his eye hand co-ordination whilst attempting to hit a ping pong ball? Whatever political differences exist between those of us of different political persuasions surely none of us need to stoop so low as to take the P out of our opponents physical afflictions.

07/01/2009

Cold Weather payments

Older people may be eligible for a Cold Weather Payment for each week of very cold weather if they get Pension Credits.

Cold Weather Payment are also available to those getting Income Support or income-based Jobseeker's Allowance who have a child under five years old or get one of the following:

a pensioner premium, higher pensioner premium or enhanced pensioner premium
a disability premium or severe disability premium
a disabled child premium
Child Tax Credit that includes an individual element for a child or qualifying young person who is disabled or severely disabled.

Given how bitterly cold it has been over the past week, older people, disabled people and the parents of very young or disabled children might expect to receive the £25 Cold Weather payment this week. But they may be disappointed.

Before the payment is made the average temperature where you live has to be recorded as, or forecast to be, zero degrees Celsius or below over seven consecutive days during the period from 1 November to 31 March.

Specified Meteorological Office weather stations are used to obtain this information.

The specified station for north Wales is in RAF Valley. RAF Valley is not in a frost trap, and is not on a hill, it is close to the sea and is subject to quite a lot of heat creating traffic. Temperatures plummeted to -12 on Monday night in Dolwyddelan, Capel Curig and Henllan, they didn't get close to that in RAF Valley. So despite the bitter cold over the past seven days older people, the disabled, and parents with very young or disabled children in north Wales are very unlikely to get the cold weather payment.

Most specified stations in Britain are in places least likely to suffer the worst extremities of the cold weather.

It seems a bit silly to me, to make a benefit available "on paper" but then to skew it in a way that makes it unlikely that it will ever be paid by using the least likely places to suffer seven days bellow freezing as the weather stations for activating the payment.

Indeed it would be better to abolish the cold weather payment benefit all together, rather than to continue to con the vulnerable into thinking that they can risk putting the heating up on the strength of a benefit that, in effect, is non existent.

19/12/2008

Annie, The Beeb and Me

Last night I attended a performance of my children's school's annual Christmas show. A performance of the musical Annie. It was a brilliant performance, all of the children showed what a wealth of talent we have in Wales. A couple of the older performers showed that they have the ability to go far if they choose to follow a performing career.

A huge amount of extra curricular work and dedication from both pupils and teachers went into the performance and all involved deserve a vast amount of praise for their effort. Of course my boy's part made me a very, very proud Dad and made the show ten times better than anything that the West End or Broadway could ever offer.

A couple of days ago I made a post on my Welsh language blog Hen Rhech Flin entitled Anabl i Fwynhau Sioe'r Nadolig (Unable to Enjoy the Christmas Show). The post noted the difficulty that I, and other people who are hard of hearing, have at this time of the year because few school halls in Wales provide loop systems for hearing aid users. As school halls are public buildings and are subject to the Disability Discrimination Act 1995, all of them should have such basic "access" equipment as standard.

My post was picked up by the BBC. I was phoned and asked if I would be willing to be interviewed about the subject of my post during the school show.

I said no!

It would be unfair to the individual school to be picked on for a problem that exists in all schools and it would be unfair to my boy to hear his Dad making a complaint about the school play that he was taking part in and had put so much effort into.

I did offer to be interviewed on the general point and to complain about the local authorities who have failed to provide the necessary equipment in all schools - but that wasn't good enough. The story was dropped.

I think that the Beebs attitude stinks. The fact that local authorities have failed to comply with their legal obligation; the fact that they have failed miserably to provide basic access for hard of hearing people to public buildings under their control, should be a good enough story, in its own right, for their journalists to investigate. The fact that they don't believe that the story is good enough unless it is sexed up by a complaint by a father criticising his own son's show just proves how dumbed down to gutter level the BBC's reporting has become of late.

08/01/2008

Blaming the sick doesn't make things better!

Antur Waunfawr and Menter Fachwen are two world leading projects that enable people who live with learning disabilities to play a full and valuable role in their local communities. They provide things such as cafés and recycling services that enable some people with quite serious disabilities to work. It's fair to say that the work that some of the disabled workforce do is not commercial and that most of them still receive government benefits in order to enable them to have a basic standard of living. However the people with, sometimes, quite severe disabilities that work in Antur Waunfawr and Menter Fachwen do work and they do help provide a valuable service for their communities.

In comparison, the suggestion that almost a quarter of a million people in Wales and two and a half million people in the UK are too incapacitated to play any role in society is clearly absolutely wrong. It shouldn't be so, it doesn’t need to be so and it is absolutely immoral that it is so!

However the blame for incapacity should not be laid upon the so called incapacitated, it should be laid fairly and squarely on the present government and its Conservative predecessor who created incapacity as a means of reducing true unemployment figures.

The whole system that leads to incapacity is flawed. Lets take, for example, a registered nurse who develops epilepsy. Clearly s/he can't carry on with that job. Nobody wants a nurse who might have a fit just when s/he's about to stick an injection in your bum! So job lost on the grounds of ill health, automatic claim for short-term incapacity granted for six months. No help or advice is given within that first six month period to consider what else s/he can do other than nursing. At the end of the six months long-term incapacity kicks in.

Once you receive long-term incapacity benefit (ICB), the authorities (not you) have said that you are incapable of any work. If you apply for a job that you think that you could do, despite your illness, the application is a declaration that you are fit for work, so you may loose money by applying for a job that you might not get. Who in their right mind is going to take that risk?

You can't even apply for training in a new occupation whilst on ICB, because if you're able to train you're able to work, so if you train you loose out!

So when a deaf, epileptic, former nurse who can lip-read finds out that there is not a single Welsh language lipreading tutor in the whole of Wales, but is told that his family will be impoverished if he dares to go on a lipreading tutor's course, can you blame him for saying no to the opportunity? Can you blame him for being absolutely pissed off and disgusted that such an employment opportunity should be denied to him by bureaucratic intransigence and unfair financial risks?

Lets suppose you do take the risk of applying for a job, because you are so pissed off with not working and you really do want a job. The Mail, the Telegraph, Tory blogs, David Cameron and even Peter Hain have gone on so much about the lead swinging, work shy, lazy, scrounging, swindlers who claim ICB. So who in the hell will even give you an interview, never mind a job, when your CV says claiming ICB for the last 4 years? No sensible employer would want to employ the caricature of the ICB claimant that is rife in journalistic and political circles. Given the choice between an eastern European desperate for work to help his family back home and a lazy git who has fiddled the country for the last four years and will probably fiddle your business too, who would you employ?

The current system of dealing with illness / disability and employment is flawed - it is in desperate need of change in order to enable those who can contribute to society through mainstream employment to do so and in order to ensure that those who are unable to get out of benefits, for what ever reason, are encouraged and enabled to fulfil some sort of valued role in their communities.

If Wales can be inovative and lead the world by providing a valued role in society for those who would have been condemned to the back wards of the assylum thirty years ago, suerly we can do better for our 250,000 incapacitaed than resorting to blame and fiscal punishment!

27/12/2007

Representation for all

After last May's election there was some disquiet in the ranks of Plaid Cymru about the party's gender balance policy of ensuring that a woman has number one spot in every list election. The main complaint was that the list preference system enabled Janet Ryder to be elected rather than Dafydd Wigley. A secondary complaint was that after Wales' allocation of MEP's was reduced by one (the "loser" being Plaid's Eurig Wyn) that Plaid has an electoral mountain to climb before it elects a second MEP. Unless Plaid gains a huge increase in votes, its voice in Europe will be female in perpetuity.

As a result of this disquiet Plaid's last party conference agreed to review its gender balance policies. In yesterday's Western Mail Dafydd Wigley suggested that the review should look at ways of enabling balance for other under-represented groups, not just women. Given his long-standing interest in disablement equality Dafydd suggested that the lists might be used to enable people who live with a disability to get elected to the Assembly.

Like Peter Black AM, I don’t think that "using the lists" is the best way of ensuring that people who live with a disability gain a voice in the Assembly. Unlike Mr Black, I don't think that Mr Wigley's comments should be rubbished and dismissed out of hand. Dafydd Wigley raises an important topic for debate. Whether one agrees or disagree with his conclusions, I think that Wigley should be congratulated for raising the issue.

This post is already longer than I intended it to be. So I shall split it and return to the subject in further posts over the next few days.